So, I have been debating where to start. After much thought,
I came to the conclusion that I should simply begin at the beginning. When
people find out I have MS, one of the first questions asked is usually, how did
they find out? So... here is a 'quick' synopsis. I will go into details of each
particular event, how I felt, how I coped, etc. but this is a summary.
There were clues, mostly ones that I overlooked, ignored, or
dismissed as my imagination. Like many people, my first real wake-up call was
brought on by a physical trauma. Mine was a planned trauma... I had a
hysterectomy. I'd had female problems my entire life, and as they progressed,
the logical choice was a hysterectomy. I never really healed from that surgery.
It took weeks longer than it should have, and I was completely and totally
exhausted. All. The. Damn. Time. It was only a few months later that the
massive head pain kicked in.
In a way, I was lucky. Since my pain started in my head, I
ended up with an MRI rather quickly in the diagnostic process. It only took
approximately four months before they did an MRI. By medical standards, that
was actually fairly fast. Now, mind you, I had already been through a slew of
tests, put onto prednisone, and seen about ten different doctors, but that is
pretty much par for the course. So... MRI. I had lesions on my brain. Five to
be precise. Then it became a waiting game. More tests, a spinal tap, lots of
blood, removal from prednisone, more tests, more doctors... No answers.
Everything came back clean except the MRI. I was diagnosed with a one time auto
immune attack.
A year later I had another MRI. Now I had eight lesions and
the start of a ninth. I had Multiple Sclerosis. Again, I will discuss my actual
diagnosis day, and how I felt soon. For now, I was actually grateful for the
delays that come with our medical system. By the time I had results, got the
diagnosis, and got another appointment with my neurologist, five months had
passed. As a result, I managed to talk my doctor into waiting to start the
medicine she wanted me on, Copaxone, until the results of the newest MRI were
back. You see, if there is a side effect to be had on any particular drug, I
will have it. I had already become a vegan, so I really wanted to make sure I
NEEDED this medicine before I agreed to take it. After a little persuading, she
finally saw it my way! :-)
The next MRI showed only eight lesions. The ninth had
disappeared. NO DRUGS! And now, here I am... I get an MRI every six months, and
at this point I have gone from nine lesions to six, and three of those are
smaller.
So, that's my story! There is more to it... there always is.
Anyone who is dealing with an auto-immune will testify to the emotional roller
coaster that is sometimes a daily event. And I will discuss that. Or at least I
will try. I am really, really, really horrible with discussing my feelings. But
for now... At least you are caught up on the 'how' part!
Have a beautiful day!
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